← Return to Essential Thrombocythemia: Looking for information and support

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@wisner

Hardly know where to begin! Diagnosis ET at 87ish…put on hydrox immediately with platelets # checked every two months. Number varies anywhere between high 400s and as high as 750-800 depending on amount of hydrox involved! The more hydrox the lower platelets BUT higher hydrox very much results in lower red blood = big time lack of energy! What to do? Yes, I’ll be 91 Sept! All I want to do is rest…. Now on only 500mg daily hydrox effort to raise red blood to acceptable level. Had been on 1500md daily.

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Replies to "Hardly know where to begin! Diagnosis ET at 87ish…put on hydrox immediately with platelets # checked..."

If you have a primary care doc, could you discuss quality of life issues with him or her? PC doc might not want to fiddle with your HU doses, but can give you ideas for how to talk to your hematologist about balancing platelet control with general well-being. Hematologist sometimes just treat the numbers instead of the patient.

You are dealing with so much, Merle. You need the HU . . . but not too much HU! Frustrating!

Sometimes all we can do is take it easy.