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DiscussionEssential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)Comment receiving replies
Replies to "Hardly know where to begin! Diagnosis ET at 87ish…put on hydrox immediately with platelets # checked..."
You are dealing with so much, Merle. You need the HU . . . but not too much HU! Frustrating!
Sometimes all we can do is take it easy.
If you have a primary care doc, could you discuss quality of life issues with him or her? PC doc might not want to fiddle with your HU doses, but can give you ideas for how to talk to your hematologist about balancing platelet control with general well-being. Hematologist sometimes just treat the numbers instead of the patient.