1. < Brain & Nervous System

Misophonia any body else?

Posted by rosemammag @rosemammag, Aug 3 4:33pm

I’ve had Misophonia for since I was 10 and am now 35. The sound of chewing and other random noises invokes this flight or fight response and causes irrational rage. It’s been so isolating and doesn’t make sense.

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celia16 | @celia16 | Aug 3 5:23pm

I’ve had it to some degree for many years. It’s not all noise, but mainly noises from neighbors yards that bug me like incessantly barking dogs. That’s a biggie for me. Also, loud car mufflers, loud equipment, loud screaming kids inside stores, loud birds, and incessant, loud talkers.

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windyshores | @windyshores | Aug 3 6:19pm

I don't know but it seems like misophonia is different from noise sensitivity (hyperacusis). I have hyperacusis but my daughter has misophonia. At times she would leave the room during meals. If she is trapped on a train next to someone eating chips I think it is very very difficult. My only misophonia issue is with whistling.

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1 reply
rosemammag | @rosemammag | Aug 3 8:42pm
In reply to @windyshores "I don't know but it seems like misophonia is different from noise sensitivity (hyperacusis). I have..." + (show)
@windyshores

I don't know but it seems like misophonia is different from noise sensitivity (hyperacusis). I have hyperacusis but my daughter has misophonia. At times she would leave the room during meals. If she is trapped on a train next to someone eating chips I think it is very very difficult. My only misophonia issue is with whistling.

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My Misophonia is pretty severe. Chewing, when people rub their teeth on a fork while taking a bite, smacking, chewing gum, even seeing people eat, constant sniffing & a lot more. I’m pretty good at knowing how to create space and avoid triggering sounds. The sounds though put me immediately into a flight or fight mode and I get angry and can even experience rage and irrational thoughts. I don’t act on the feelings, but it’s so debilitating at times, isolating and creates feelings of a lot of shame.

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1 reply
windyshores | @windyshores | Aug 3 9:43pm
In reply to @rosemammag "My Misophonia is pretty severe. Chewing, when people rub their teeth on a fork while taking..." + (show)
@rosemammag

My Misophonia is pretty severe. Chewing, when people rub their teeth on a fork while taking a bite, smacking, chewing gum, even seeing people eat, constant sniffing & a lot more. I’m pretty good at knowing how to create space and avoid triggering sounds. The sounds though put me immediately into a flight or fight mode and I get angry and can even experience rage and irrational thoughts. I don’t act on the feelings, but it’s so debilitating at times, isolating and creates feelings of a lot of shame.

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Sounds like my daughter. She also has migraines and a seizure disorder so not sure if misophonia is brain-based but it seems likely. Anger and violent thoughts are not uncommon. Fleeing is better!

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celia16 | @celia16 | Aug 22 7:56pm

I just saw this piece about Melissa Gilbert getting diagnosed and treated at Duke. I was impressed. Duke handles most of my specialty needs, including Neurology.
https://www.yahoo.com/entertainment/little-house-prairie-melissa-gilbert-111504747.html

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