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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (899)Comment receiving replies
That is a complicated and never-ending, Catch-22! You said that you lived in CA, would it be worth it for you to connect with a cardiologist who specializes in HCM? Perhaps Mayo could make a recommendation or a Californian/Oregonian etc can make a suggestion based on their experience. Travel is annoying, time-consuming and could be expensive, we both went to Rochester MN because they were tops. It could be worth it widening your options.
Replies to "That is a complicated and never-ending, Catch-22! You said that you lived in CA, would it..."
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Hmm...I had not thought of that. You're so smart!
I actually have an appointment coming up in October in Rochester. Like you said, we have both experienced the Mayo Clinic and know deep down in our little hypertrophic hearts they are the best.
I've recently noticed some symptoms that I didn't give much thought about but when the anesthesiologist heard them he said no way... surgery not happening.
I tried to convince him that these are just typical for HCM after septal myectomy. It caused me to reach out to Cardiology and Dr. Ommen said they are not typical and I need to be evaluated.
Here we go again! The rock and the hard spot. I have no confidence in my local cardiologist, I don't even see him...I see one of his PAs. And I know they are not savvy with HOCM/HCM.
Not like the Mayo!
So here I am, in far, far Northern California, not near any COEs, and contemplating if I should postpone my knee surgery until after I am seen by Mayo. I honestly know the local guys will say I'm fine...but I don't know if they know, you know??