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← Return to Sensory Ganglionopathy help!!
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Neuropathy | Last Active: Aug 15 5:06pm | Replies (24)
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Hi Leslie hope your well
I’ve had this condition almost 3 years now , I recognise the tightness round the legs , I also have over sensitive fingers and feet but my main condition is lack of balance.
I live in England and I’ve had a few courses of infusions which have helped the tightness in my legs ( don’t know if you tried this ) but can’t have any more because of the expense on the NHS it did help a little with my balance but can’t walk unaided.
Was wondering what treatment you’ve had
Replies to "Hi Leslie hope your well I’ve had this condition almost 3 years now , I recognise..."
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I haven't had any treatments. I am now off of gabapentin and only on savella. I wish there were other treatments that they could do here in the states. I've had physical therapy to help with balance. I am interested to know as far as publication what they have over by you. All I've been told is I have it. There's not a lot of information about it. And there is no testing or like a clinical trial. So I know with my balance situation I'll always have to use a Walker. I am now going on 2 years with us. I hope they're finding answers for you. Welcome to the ganglionopathy club. There are a couple of people within this thread. They have it just like us. Thank you for the response.