Connect
← Return to Connecting The Vision - The Ocular Involvement in EDS/HSD
Newsfeed PostNewsfeed Post in blog Ehlers-Danlos Syndrome
Connecting The Vision - The Ocular Involvement in EDS/HSD 3 days ago | By Brii Sessions, EDS Moderator (@briisessions)Comment receiving replies
I'm so interested to find this info. regarding EDS/hEDS and ocular issues! I have been trying to put some connections together, and this article just did!
I was DX with OAG at 45 and very elevated ocular pressure that drops were difficult to resolve. I was so frustrated and worried, until my opthomologist suggested the Durysta implant to relieve the eye pressure. It worked . . . I'm at the 8 mo mark and told it usually lasts 8 to 18 mos.
Meanwhile I was also DX with hEDS and my complicated medical journey leads me to put connections together, and when I put these two together I saw the relationship. I sort of called out loudly - I KNEW IT!
I have some questions remaining: * might the collagen issue / hEDS be the reason I have glaucoma? * what can I expect the long term to be with hEDS and glaucoma? * are there certain ocular prescription meds I should steer clear of with EDS that could cause complications?
Replies to "I'm so interested to find this info. regarding EDS/hEDS and ocular issues! I have been trying..."
Connect
Good questions @kannshep and @ersingh According to Mayo Clinic EDS specialist, Dr. Knight, "there is not enough evidence in the literature to show a strong connection between EDS and glaucoma. Treatment of glaucoma should be directed by ophthalmologist and a diagnosis of EDS may not likely change their strategy."
"Likewise, there is no clear evidence in the academic literature to show that eye movement is impaired, but this is something patients report from time to time."