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Primary Cutaneous Gamma Delta T Cell Lymphoma
Blood Cancers & Disorders | Last Active: Aug 30 5:09pm | Replies (27)Comment receiving replies
Not sure if im posting this in the correct spot. How are the primary cutaneous gamma-delta t-cell lymphoma peeps? I've been wanting to check in. We have completed the ICE chemo and will be getting a BMT the 14th. He had 4 matches, dr went with the 21 yr old male somewhere in the US. Hopefully we will be able to thank him some day. Since this is such a rare disease, he was asked if he would be apart of the research, maybe everyone who gets this gets asked? They will be taking blood and tissue samples to Mayo to be studied.
Replies to "Not sure if im posting this in the correct spot. How are the primary cutaneous gamma-delta..."
Hi @graycoose! I haven’t seen an update from you! How is your husband doing? Was he able to go through with his transplant on Aug 14th?
I hope you’ll join me here to give an update on your husband’s transplant!
My bone marrow transplant story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
How are you doing through this process?
Connect
Good morning, @graycoose! Oh golly, congratulations to your husband moving past his last cycle of chemo. It’s a relief to get that portion behind him, I’m sure. Now to the next leg of the journey.
He’s fortunate to have 4 potential matches. That gave his doctor some options. I remember the moment my doctor showed me my DNA twin…it was so fascinating. My donor was also a young male, 20, from the US. It’s been such a successful transplant and I owe that young man my life. However, even after 5 years, he has chosen to remain anonymous. It’s ok, as much as I’d like to meet and thank him in person, he owes me nothing. But I owe him everything. So I do hope your husband can meet his donor at some point. In the US you can initiate contact after one year.
Since you both will be part of the bone marrow transplant family here in Connect, I’d love to invite you over to this discussion I started a couple years ago. You’ll be able to chat with the rest of us who have had our BMT for one reason or other… you’ll meet @katgob @mary612 @alive @edb1123 @kt2013 @jenmkr63 @jrwilli1 @ tkidd51 just to name a few.
Here’s the link:
My bone marrow transplant story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
I hope you’ll join us over there! Do you have any specific questions about the transplant? As the caregiver, you have your hands full too with all the added level of stress and responsibility. How are you doing?