@nzq21p I can see what a shock the diagnosis is. May I ask if you have started treatment and what the plan is?

Hello @nzq21p — my heart goes out to you. What a shocker indeed to get this diagnosis.

I am of similar age to you, post menopausal for eight years and in very good health. I had a sudden onset of very heavy bleeding — no other symptoms — and went to the gyn immediately. An ultrasound showed nothing and an endometrial biopsy was negative. You can imagine how surprised and shocked I was when a follow up ultrasound two months later revealed a softball-sized uterine tumor and a second biopsy was positive for endometrial sarcoma. I am very fortunate to have a great medical team that recognized the need for quick action. I had a full hysterectomy about a week later.

Since there was no evidence of spread, the standard of care for me was surgery only (no chemo or radiation). I am now in “surveillance” to monitor for recurrence with scans every three months for two years, less often after that. So far so good but there is a long road ahead.

Have you learned anymore about your treatment plan? I hope you are feeling supported as you go through these first months. Please reach out with other questions, I’m happy to share my experience. My thoughts and prayers are with you.