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Lumbar stenosis and C spine stenosis
Brain & Nervous System | Last Active: Aug 3 5:15pm | Replies (9)Comment receiving replies
Your comments are very helpful to me. I just joined Mayo Clinic connect because I am suffering from postop pain after extensive fusion of my lower spine and pelvis for spinal stenosis DISH. Two years earlier at cervical fusion for a different areas of spinal Stenosis. Is there a discussion or a group focused on helping postop patients with their issues of wound pain, postop pain, neuropathy, pain at the mental and physical health thereof. By the way, I had both my surgeries at the Mayo Clinic in Rochester and was very pleased with my care Now back in the rural community, where they are totally overwhelmed by such a complex case. I would love to find or start a discussion group with similar patients. Please advise. Thank you.
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@drrob1 Welcome to Connect! I agree and thank you for your kind words. Mayo is a great place if you need spine surgery. I was impressed with the quality of my care and the great results I had after all surgeries I've had there (spine and ankle). We have a lot of patients talking about these issues in many different discussions. Here are a few that I found that may be of interest to you.
Spine Health - "Advice for spouse of Spinal Fusion surgery pre-op and post-op"
https://connect.mayoclinic.org/discussion/advice-for-spouse-of-spinal-fusion-surgery-pre-op-and-post-op/
Spine Health - "Anyone who has had Cervical spinal compression surgery"
https://connect.mayoclinic.org/discussion/anyone-who-has-had-cervical-spinal-compression-surgery/
Spine Health - "DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's"
https://connect.mayoclinic.org/discussion/dish-disese-diffuse-ideopathic-skeletal-hypertrophy-or-foresters/
Spine Health - "Does anyone have DISH and/or OPLL?"
https://connect.mayoclinic.org/discussion/does-anyone-have-dish-and-or-opll/
If you just click the link to the Spine group (at top left), you'll get a list of the current active discussions and you can look through those. Also, you can search by typing a term in the search bar at the top, and find discussions about that topic. I just selected these links for you by scrolling through the current discussions, and since your diagnosis is also about DISH, I included a couple of those. It's easy to connect with other members in an active discussion and ask questions.
How long has it been since your surgery? I do know that lumbar surgeries take a lot more time in recovery and are more painful because you are bearing your body weight there and that is hard when it causes pain. My surgery was cervical, so that was a much easier recovery, but it really took about 3 months until I stopped noticing that I was recovering from surgery. There certainly is a mental and emotional part to healing, and mine was being able to recovery my ability to paint because I am an artist. I had lost coordination in my arms because of spinal cord compression. I had to prove to myself that I could paint again. Can you guess what I did? I set the bar pretty high for my first post op painting.
https://newsnetwork.mayoclinic.org/discussion/using-the-art-of-medicine-to-overcome-fear-of-surgery/