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@karukgirl

@katiekins, that is a lot of information to process! Have you had a second opinion? I don't like seeing you say you may just have to accept what he says...and that you didn't get to ask what you wanted to. I think when we hear something we were not expecting, and are shocked, our brain shuts down and we can't think of questions until after we have had time to process.
When do you see your cardiologist again?
Do you have a list of questions ready to ask?
This is your life! You need to feel confident about what has been proposed.
My gradient, if I recall was abnormal but not every time. Which was frustrating because I knew something was wrong. During surgery, with a medication that affects the heart my gradient was 216. The surgeon said I had severe HOCM and needed this surgery. It was a sad way to get validation I must say!
I just had an echo today. First in three years. I shall see what is new in the near future.
Best to you over there in the UK too!

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Replies to "@katiekins, that is a lot of information to process! Have you had a second opinion? I..."

I am surprised that it was so long since your last echo. Three years. I have one every year. I suppose different doctors have different ways of treating HCM. Please let us know if there have been any changes for you, I am concerned that the thickness will "grow back" over time (hope not).