Well, no pain from a UTI (or a cancerous growth not yet diagnosed) that came with Urgent Care, an Emergency Room visit over the weekend. Then, a follow-up visit. Somewhere between the parking lot of the hospital and the drive home, my dear husband's pain became full-blown pain. And so the plans to finish up painting walls after the installation of a new tile floor to make things easier to clean up and a refresh of the walls not painted in 20 years has to wait. Pain is disrupting sleep, and when my dear boy sees blood in his urine, I must reassure him every time I am working on getting him proper medical care since short-term memory issues bring anxiety. -- This morning, I want to say, "Not Fair." I was just getting the hang of dealing with dementia and cancer after 10 years. It is an illusion, but an illusion can be an ally. -- The pain meds are working and the first instinct of my lovely boy is to be helpful. So he refills my cup of coffee, and I take 5 minutes to purge on this website to give a bit of hope before I try to figure out a new plan. -- We are lucky. Somehow, in a stretched medical system, we have been scheduled for an appointment with a urologist on Monday. Believe me, this is as close to a miracle as it gets. Russ, at 94, makes it difficult to convince medical providers he is not ready to give up and quietly die. As his advocate, I have learned to be gently forceful. How is that for an oxymoron? And I do a fine job, but this morning, I am feeling a bit sorry for myself. My 87-year-old bones are aching from the extra work the tiling project has brought. I am stymied by setting priorities to alleviate clutter that brings me pressure. -- Anticipation of moments like this is the reason I hired lovely Kayla. This morning I texted her that there is no game plan for Tuesday, her scheduled day. What I need is someone who has a clearer eye than my own. Dear Boy's daughter is coming for a visit on Thursday. We have to carve out a few moments of love and laughter in the midst of uncertainty. And I know without Kayla's help, it would be impossible. -- If there is any message in this post, it is flexibility, and flexibility is only possible because I have come to realize that only birds fly in a straight line to their destinations. While my dear Boy rests, I will remove at least one job from the To-do list. But, mainly, I have changed my focus to the visit instead of having things perfect for the visit. -- You give me strength, dear friends. GloRo
@gloro your posts have been very helpful to me. Thank you.
Flexible is my new mantra. Just when I think we have a good plan in place everything changes.
Last night I had to clean the bathroom floor twice when I turned away for a moment and dear hubby urinated on the floor. Earlier, he went while lying on top of the bedspread. (The brief did not catch it and I didn't bother putting pads on the bed because this has never been an issue.) I try to plan ahead for what "might" go wrong but can't anticipate every new change.
Like you, I've set the bar lower for things that can wait, no matter how badly I want to accomplish a task. Today, I'll be satisfied to get the soiled bedding washed.
Blessings, jeh