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Does anyone have any information on FLNC Variant c4969C?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 6 7:07pm | Replies (5)
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@JustinMcClanahan

Hi @jcdaire83 - Here is a link with more information about Mayo Clinic's Cardiovascular Genomics Program, https://www.mayoclinic.org/departments-centers/cardiovascular-genomics-program/overview/ovc-20442075.

It is great to hear that your cardiologist is willing to work with you to help you find the best research center for your genetic variant. In the meantime, has your cardiologist given any recommendations on how to manage or monitor your diagnosis? Have they given you some things to watch out for?

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Replies to "Hi @jcdaire83 - Here is a link with more information about Mayo Clinic's Cardiovascular Genomics Program,..."
jcdaire83 | @jcdaire83 | Aug 6 7:07pm

My doctor implanted an ICD in December because of the following symptoms: Low Ejection Fraction Rate, Vtachs, and scaring in my heart. These are typical symptoms of the FLNC variant.

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