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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
Hello Debra, the e.mail comes from Mayo clinic but don’t know how to get to settings on my Mac computer! Silly me. It didn’t happen before so will just have to sign in each time. I don’t believe I am having transcatheter repair. I am supposedly having a minimally invasive repair/replacement but am looking for a robotic repair but believe only one surgeon does robotic in the U K. I have to sign a form that incase the surgeon has to go in from the front I agree. I was shocked when he said that it’s my mitral valve in May so have to accept what he says. It was so quick I felt I didn’t ask what I wanted to ask. He also said Camyos wasn’t for me as thickening is only 1.5 mms but gradient can go up to 111. On valsalva. I wonder why yours is still high though. This is a wonderful site to get information from so thank you all for your input, Do you feel better after your myectomy? Good wishes to you. 🙏🏼
Replies to "Hello Debra, the e.mail comes from Mayo clinic but don’t know how to get to settings..."
@katiekins, that is a lot of information to process! Have you had a second opinion? I don't like seeing you say you may just have to accept what he says...and that you didn't get to ask what you wanted to. I think when we hear something we were not expecting, and are shocked, our brain shuts down and we can't think of questions until after we have had time to process.
When do you see your cardiologist again?
Do you have a list of questions ready to ask?
This is your life! You need to feel confident about what has been proposed.
My gradient, if I recall was abnormal but not every time. Which was frustrating because I knew something was wrong. During surgery, with a medication that affects the heart my gradient was 216. The surgeon said I had severe HOCM and needed this surgery. It was a sad way to get validation I must say!
I just had an echo today. First in three years. I shall see what is new in the near future.
Best to you over there in the UK too!
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Sorry Karyukgirl was meant for. It’s late!