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Mast Cell Activation Syndrome or Histamine Intolerance
Autoimmune Diseases | Last Active: Aug 13 1:32pm | Replies (9)Comment receiving replies
@pjrockz88 I would suggest you call one of the autoimmune organizations that keep lists of appropriate doctors.
GARD. Genetic and rare diseases organization. https://rarediseases.info.nih.gov/
NORD. National Organization for Rare Diseases https://rarediseases.org
I can only imagine how difficult this must be for you. How long have these hives been a problem? Have you discussed this with your PCP?
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I have. And they throw antihistamines and other drugs at it, but no one ever finds a cause and as soon as the drugs wear off a bit, the hives return. Doctors seem to try treating this as a mere skin condition, but if they would touch the hives, you can feel that it goes deeper. I fear whatever this is has inflamed internal tissues. Thanks for responding!