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DiscussionAnyone have any success with going to an LC clinic?
Post-COVID Recovery & COVID-19 | Last Active: Oct 2 7:48pm | Replies (48)Comment receiving replies
Replies to "Can you give me the name of the doctor at northwestern? Thanks Jill"
Sure. If you mean the Long COVID physicians, I specifically saw Aasheeta Bawa, PA. She's the PA for Dr. Koralnik, whom I've heard mixed things about (many of them in this thread). They're technically in the Neuroinfectious Disease clinic in Neurology at the downtown campus. You can find them on this page: https://www.nm.org/conditions-and-care-areas/infectious-disease/covid-19-overview/comprehensive-care-after-covid-19/meet-the-downtown-comprehensive-covid-19-center-team
(If you wanted the name of my PCP, let me know. I highly recommend her, but I just found out there's a yearlong wait for a new patient appointment with her. Her colleague has openings sooner though.)
I recommend calling to schedule with Aasheeta. I'm a longtime Neurology patient and with the super-specialists, I always find that the NP or PAs tend to want to get to know me more as a person and have longer appointments that are available sooner. In my first appointment, she took the lead on taking down my history, but Dr. Koralnik came in to speak with me at the end too. I felt seen.
My major disclaimers are related to those I've alluded to in this thread--Neurology anywhere, but in particular at Northwestern is not really known to be the most communicative or personable of the specialists, and they use the typical model of testing/assessing, then moving on to medications, of which there are very few clear-cut options for any type of chronic pain condition, let alone Long COVID. If I was going to be really cynical about it, I'd say: "They just took a bunch of notes on my symptoms, said they're sorry, and offered me a script for an antidepressant/neuromodulator and sent me on my way." But while that did happen, I did learn some things I hadn't learned before and was given some leads that were new to me.
If you're interested in medication, they are aware of the options that are evidence-based and used off-label. They pretty much stick to things that have more established research though (i.e. they're not prescribing Paxlovid).
I don't regret going, but I managed my expectations because I've had chronic pain conditions for a very long time before this and in my experience, most of the responsibility frustratingly falls on the patient to do research, follow up, and follow through, and it's also my experience that physicians, particularly in Neurology, aren't very well-informed about non-pharmacological interventions for conditions like fatigue, post-exertion malaise, brain fog, or any type of chronic pain. And that's one of my pet peeves because those are some of the most effective interventions with the least amount of side effects. But that's a different soapbox for another day.
I was basically expecting it to be sort of impersonal and mostly revolve around collecting information and some possible offers for off-label use of medication or the standard options already out there for chronic pain...I hoped for support with PT, OT, or speech. But my appointments with Aasheeta have been positive. They did offer medications, but they also told me about their support group and told me of some options I hadn't heard of before, such as cognitive therapy to help with my brain fog.