Hello @jcdaire83, and welcome to Mayo Clinic Connect.
I am so sorry that your brother passed away so suddenly. It's never easy to lose a loved one and your whole family must be in shock. And then to find out most of you and your family have the same genetic variant puts a whole new spin on your grief. People with HOCM/HCM (hypertrophic obstructive cardiomyopathy/hypertrophic cardiomyopathy) all share the risk of SCD (sudden cardiac death) which none of us likes to even think of. But sadly it is a reality. And your family now knows and has this hanging over your heads.
I have posted a link below from the National Library of Medicine. Perhaps you have already done your own research on this.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7318287/
I did a quick search here on Connect and your post is the first and only post I could find with the mentioned information.
I am also posting a link to Mayo Clinic and HCM:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
And then because you may want more homework, I am posting another link to Mayo Clinic Genetic Counseling Department that may be interesting.
https://www.mayoclinichealthsystem.org/services-and-treatments/medical-genetics
The Mayo Clinic Rochester are the leading experts in Hypertrophic Cardiomyopathy. They are leaders in genetic testing and family counseling too. You have come to the right place for information, and I am sorry that I could not find any other posts regarding this variant on Connect.
Have you had a chance to read up on this, or is it still all a blur?