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Does anyone have splenic marginal zone lymphoma?

Blood Cancers & Disorders | Last Active: Aug 20 7:15pm | Replies (26)
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@gjk

Dont let them wait and watch. Seek another opinion. The first dr I went to said the same thing. I decided to go to MDA and the dr said no to wait watch. It needs to be treated. My spleen was 21 cm. After rituximab is has now shrink to 11 cn.

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Replies to "Dont let them wait and watch. Seek another opinion. The first dr I went to said..."
lila1 | @lila1 | Aug 5 9:17am

Hi. Also went to MDA Houston, Dr. Chihara. He doesn’t like splenectomies, mainly Rituxan. Were you given idea how long PFS? How was your labs post-rituxan? I have low platelets/lymphocytes/IGG rn and concerned Rituxan could bring latter two down lower. Am mulling over this study rn… https://acsjournals.onlinelibrary.wiley.com/doi/full/10.1002/1097-0142(20010115)91:2%3C294::AID-CNCR1001%3E3.0.CO%3B2-W#:~:text=BM%20infiltration%20ranged%20from%2010,patients%20showed%20an%20unmodified%20picture.

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lila1 | @lila1 | Aug 6 6:08am

Hi glk. How many rounds of rituxan did you receive? How else did it go for you in addition to shrunk spleen?

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