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@santosha

Hi @boomarang
Today, for some reason I do not understand, I could copy the link showing the demonstration of this nasal spray.


For sure I have read your inputs. But my memory is no longer the same, I can not remember them now. Sorry.
What I have read is that when having a seizure because Temporal Lobe Epilepsy, one does not lose consciousness. Can you remember after the seizure all that happened during the seizure? Does your mind get confused and agitated after the seizure? Do you lose the capacity to speak for a while?
Having Temporal Lobe Epilepsy, I also know my surroundings and people around me when it starts (aura - focal simple partial seizure), but it evolves to a focal complex seizure, I lose much of my consciousness and can not remember what happened during it. I do also stare into space and get absent. Though, my husband says that when he hugs me during a seizure, I hug him back. I do not fall. Those seizures also last less than one minute. When younger, I came back from those seizures immediately as if nothing had happened. This started to change after my forties. Today, coming back to reality and being able to speak again can take up to one hour, depending on the intensity of the seizure. Rest and sleeping are the best ways to recover after a seizure. I do also get very tired after it nowadays.
It is something new to me to know that you may fall during a seizure when you are up on your feet. According to my readings, those with frontal lobe epilepsy do not fall during a seizure. Has it always been like that? You said that your seizures start with your right hand waving. This happened to me just while I was taking AEDs. The doctor at that time said that the waving was on my right hand, because my epilepsy is on the left side of my brain. Now that I am controlling my seizures through medical cannabis, diets, exercising, sleep hygiene, etc., right hand waving disappeared. Did you always had a waving of the right hand or did it start with some medications?
Wishing you still a good week!
Chris (@santosha)

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Replies to "Hi @boomarang Today, for some reason I do not understand, I could copy the link showing..."

Chris @santosha Lots of questions you have. Your memory loss disturbs me. In answer to your questions. I have the blank stare into space. In my home we call it "the thing. Waving of the right hand then slapping it up & down on the bed. I remember after. Not confused/agitated after. Will slur speech during. I know surroundings & people. Usually last less than one minute. Take a long, couple of hours nap after. I did fall the last time luckily on carpet, friend caught me & gently lowered me down, put pillow under head covered me & I slept very well. My first experience with seizure 2013 my whole body would shake. Shoulders, arms, legs would all flail. No control. Hospitalized, many tests & meds. KEPPRA WAS MY WORST EXPERIENCE. I WENT TO A VERY DARK PLACE. Noted on chart DO NOT GIVE KEPPRA. Medication now is, Generic Zonisamide 300mg daily at bedtime. It has worked well for 5+ yrs. I think you are much younger. I am 94 years young. My mind seems very good. I think very positive thoughts. The body has slowed down a bit. I have Afib. + Pacemaker. I am looking forward to more years. I wish you well. Sorry for the delay. Family, Great, Great Grandchildren 2yrs. & 5yrs. visiting for first time. After reading this you may go back & read my other similar post. Thank you for reaching out. Always be curious. Ask any time you have questions.