I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me.
This is cancer of the blood in the bone marrow.
Then my spleen got larger and then my liver as well.
My CBC numbers changed. My white blood cells (WBC) got low.
My Polycythemia Vera has now changed to Myelofbrosis.
Chronic Leukemia.
I’m now taking Jakafi 5mg twice a day.
There are days I am so tried that I take a lot of naps.
I’m 69 years old.
Jakafi cost is high. It’s $20,000.00 for a month supply.
I’m lucky that my insurance is paying for all of it except $1,019.00 . My co-pay.
Good luck in the days to come.