My best to you and your son. I went over 3 years without getting the treatment needed as I had many of the symptoms of your son. My worst was my vision loss. I was told after numerous appointments it was old age, etc.
When I finally had a MRI the tumor was the size of a small egg. Two years ago the Pituitary tumor was removed, but due to its size I lost vision for the most part in one eye and am taking Hydrocortisone and male hormone gel for the rest of my life. I wish I had known more about the symptom and had vision doctors that were more aware of the possibilities. I