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I was checked 3 times for valley fever when trying to diagnose me. I never had it. However, the comment about listening to the Dr advice and potentially not the bloggers I will question as my ID Dr said nothing to me about ACTs boiling my water any precautions. Just told me to talk my meds. He didn’t do any susceptibility testing , any borderline testing. It had been 6 months since I had had a CT and any labs. I pushed for monthly labs and every 60 days CTs and sputum testing. Within 3 months of starting meds my x-ray had stabilized with the one almost a year before that. Within 4 months after meds 3 sputums came back negative. However my labs are all over the place. He has put things in my chart that aren’t true. Like continuous cough, never had one, loss of weight (haven’t lost a lb but have sure gained). The blogs have been my life saver in pushing my Dr getting advice questioning him. And yes I have tried to change drs. Basically impossible. And I have a mild case!
Replies to "I was checked 3 times for valley fever when trying to diagnose me. I never had..."
I agree with Rick about blogs vs medical advice. I believe the key is to strike a balance. I use these groups for helpful advice about living with the diseases, but also cringe (sometimes am horrified) at some of the advice I see given, esp when I followed another popular MAC blog briefly. A nice doc who sees people with these diseases every day is invaluable, IMO.
If you can get a consult with a specialty clinic to get a plan, even if it takes a while, I think it would be beneficial.
I wonder if doctors have to list and say things in notes for proper coding for, you, for qualifying for certain types of approvals...be it equipment, meds, etc.??? However, some things are best corrected as scoop has said if you believe it needs to be.
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If incorrect info in your chart bothers you enough, it's possible to write to the hospital/clinic to submit corrections. FWIW, I notice incorrect info/outdated medications often on my chart. If inaccurate info impacts my care I would try to get it corrected. Otherwise I chalk it up to a wildly changed health care system with over worked care givers, doctors and otherwise.