Connect
← Return to Immune Thrombocytopenia Purpura (ITP): What helps?
Discussion
Immune Thrombocytopenia Purpura (ITP): What helps?
Blood Cancers & Disorders | Last Active: Nov 8 4:14pm | Replies (166)Comment receiving replies
Has anyone had success in treating ITP? It is an autoimmune disease that attacks the platelets in the blood that reduces the ability for the blood to clot. I’ve been on steroids for about 4 months, was taken off them about 3 weeks ago, and have just been put on the medication, Promacta, which was developed specifically for ITP, but my platelet count doesn’t seem to be responding.
Replies to "Has anyone had success in treating ITP? It is an autoimmune disease that attacks the platelets..."
My husband was diagnosed with ITP in 1996. Within a few weeks of his diagnosis, they removed his spleen. He was then on Prednisone for about 7 months and weaned off it over a few months thereafter. He was lucky - the removal of his spleen for the most part resolved his ITP. He has to be careful about exposure to certain viruses, but for the most part his ITP has resolved.
Connect
Welcome, @gwilli. To help introduce you to other members living with ITP, I moved your post about treatment to this existing discussion:
- Immune Thrombocytopenia Purpura (ITP): What helps?
https://connect.mayoclinic.org/discussion/idiopathic-thrombocytopenia-prpura-itp/
Click the link to read previous posts and ask questions. You'll meet others who have experience with eltrombopag (Promacta), like @emmalapp @et09 @vishu1009 @kshizzle1304 @jaynep @rockitman and others.
See all discussions related to ITP using search https://connect.mayoclinic.org/search/discussions/?search=ITP
How long have you been on eltrombopag (Promacta)?