← Return to Amiodarone induced hypothyroidism

Discussion

Amiodarone induced hypothyroidism

Heart Rhythm Conditions | Last Active: Jul 30 12:06pm | Replies (5)

Comment receiving replies
@bettyann6

So sorry to hear of these problems with reactions to medication. I have been on Synthroid(the nongeneric of levothyroxine) since I was 17 years old. I am 84 years old now. Among my lifetime health issues (besides HCM) have been a thyroid that doesn’t function normally and sensitivity and/ or allergies to medications. I tried Levothyroxine because Synthroid is so expensive but it did not work well for me, and I had to switch back to Synthroid. This might be something for you to think about. As for amnioderone, I took it for a while after my open heart surgery at Mayo Rochester, but they did not keep me on it for long. I also had to take it because of AFib after my Covid shot that put me in the hospital for several days. I can totally relate to your problems. Amiodorone made me feel awful, and I couldn’t wait to get off of it. In addition, I was on Eliquis like you. The side effects from Eliquis were as bad as the disease. Among the side effects was waking up every night bathed in sweat. I was exhausted not only from HOCUM but also from not being able to sleep because I was so hot. So they put me on Xarelto, which works fine. However, like Synthroid, I have to pay more for it. But thank God, I got a tier exemption from my insurance and that problem has been solved. I now pay only $6.00 a month instead of $100 a month. I’m doing all right now. So, I hope you can get some resolution to your problems. Don’t hesitate to advocate for yourself. Every day is worth it. 🙂

Jump to this post


Replies to "So sorry to hear of these problems with reactions to medication. I have been on Synthroid(the..."

Thank you! I'm so glad I found the Mayo Clinic's connection system. It really has been such a help since I've had 1 cardiologist, 1 cardiologist specializing in cardiac physiology, and now a new cardiologist and also my primary care doctor who have not been forthcoming on the side effects of the medications over the last year. I was fine before I fell 20' in 2023, then during the hospitalization the hospital cardiologist gave me the high doses of Amiodarone (400mg) and Diltiazem (240mg) and waited until April to reduce Amiodarone (200mg), then my thyroid and liver levels were in danger zone and Amiodarone was stopped and strong evidence from Mayo and other health orgs. state Amiodarone has a long life in the system but the Cardiophysioloigst gave me Flecainide almost immediately and finally stopped all the meds from 2023 in December 2023.

So, the thyroid was permanently damaged and liver returned to normal and now I have to have thyroid mediation.

I blame myself for not looking into the medications myself and questioning my health since the side effects were debilitating and I still didn't do anything. And, the doctors still have no had any discussion about this with me. My new cardiologist after I was telling her that I had thoughts of suicide during and after the end of the meds, and when I stopped talking for a minute she said "are you finished"? So, I think that remark from her says it all. So, now I'm engaged but I guess better late than never and this site has been a Godsend. So I'm off to find new doctors for my heart and my healthcare since like you, I'm older and I know there are doctors out there that will discuss health issues in a conversational manner and not just pretty much being a number where at the height of a very emotional time in my life ask me "are you finished".

Thank you again!!! And, now as ya'll the damage is done, and now I have to figure out how I maneuver the rest of my life in a health care system that has gone down the drain. All kidding aside.