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Conflicting Diagnosis AMD or Pattern Dystrophy
Eye Conditions | Last Active: Aug 5 8:39am | Replies (5)Comment receiving replies
Hi!
It sounds like you are going through something similar that happened to me when I was diagnosed with Retinitis Pigmentosa at age 60. That is rare also. Most people get this at age 20. I did all the tests etc. they suggested and listened to how my vision was shrinking but it wasn't. It was the same as it's always been. Not perfect like yours because I have had glasses since I was 6 and I'm now 78. But my vision wasn't changing. It was the same as it has always been and 18 years later, it still is the same. I don't think I have Retinitis Pigmentosa and never did. But they did get a lot of money out of my insurance for a while. I just prayed about it and quit going to the eye doctors so often; just for a regular yearly check up and not to the ones that said I had Retinitis Pigmentosa.
Just pray to God about your eyes and tell him all of your concerns and fears. He will help you and make everything OK again. God always does. If you are still seeing good, then don't bother going to the doctors. Say your prayers and have faith. Everything will turn out fine. God made your eyes and he can fix them; if they need it and they may not need fixing. The doctors could be wrong.
I will say a prayer for you.
PML
Replies to "Hi! It sounds like you are going through something similar that happened to me when I..."
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Hi,
Thank you for the information. It is so upsetting and scary to receive conflicting diagnoses. Unfortunately, I learned this week that my father had been diagnosed with AMD at the age of 84, not sure how long he may have had it before the diagnosis. and my 89 year old aunt, his sister, has had it for at least 10 years. I am very confused why this information has never been shared with me AND I am still confused why I would develop this at 25 to 30 years younger than most people. Here is my new dilemma. Yes, I learned AMD is in my genes but it is rare to be diagnosed before 55 years old, I told the doctors it does not run in my family because I believed it did not. Then I was diagnosed with most likely having a Pattern dystrophy which is also rare and does not run in my family (that I know of). Now what? I inform the retina specialist that I learned AMD does run in my family, not as young as I, but it does run in the family, will he change my diagnosis or will I still be in a whirlwind of sadness and confusion? The two diseases are similar, yet different.
Doesn't a specialist have special machines to distinguish between diseases? I should probably get a third opinion but I am petrified.
I am praying every single day. I pray for God to have mercy on me. I pray for him to please stop the progression of whatever it is I may have. I don't know anyone with any eye diseases at my age that I can talk to or get more information. Google only adds to the stress with worse case scenarios, How bad are things going to get for me, and how soon???
I feel so empty inside like I have a huge hole through the middle of my chest.
Please pray for me to make it through this. Thank you
PTL