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Is there a Sepsis Survivor's Support Group?

Intensive Care (ICU) | Last Active: Aug 27 5:38am | Replies (17)

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@snapper8182

I am looking for a support group for Septis as I was recently released from the hospital after pneumonia and Septis. Would really like to hear other post hospital experiences while recovering from the continued effects of Septis.

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Replies to "I am looking for a support group for Septis as I was recently released from the..."

Hi @snapper8182, From what others have mentioned in the forum, having pneumonia and sepsis was a harrowing experience. I’m so sorry you’ve had to go through that.
Here are a few of the discussion in Connect from members who have dealt with sepis and icu experiences.

This discussion is older, having been started in 2011. But the more current replies are easy to find if you reverse the chronological order in the button below the opening paragraph.
You’ll meet members, @amylee1111 @plexiclone
@vlbondon @lonna72789 and several other members here:
Sepsis: What's your experience recovering from sepsis?
https://connect.mayoclinic.org/discussion/sepsis/
Another discussion which might be helpful for you is this post with @ew62 @cindylb @yvonne55 @tanner0515 and others:
Post Sepsis and ICU Syndrome: There are days I feel so down
https://connect.mayoclinic.org/discussion/post-sepsis-and-icu-syndrome/
Are you doing better now? How long were you in the hosptial?

If you would like to visit about recovery, I would be happy to help. I am a survivor of Sepsis as well. We could brainstorm as to how we could carry this out.

Dear Snapper, I had it and can only wish you a recovery from a time spent in hell. I had chronic UTIs and this time had no symptoms so just gradually got tired more and more along with diminished brain cognition. So crazy I figured if I didn't know what I had, no doctors could figure it out. My partner finally called my MD who said get to ER, and the ER would not let me leave, kept me for 10 days. They got the CDC involved, infectious disease also here in town, and finally found an IV antibiotic which would work. Meanwhile I got very delirious, had delusions, illusions, nurses turned into ninjas at night, no sleep, terror grabbed be as I lay there barely able to think. I was released with IV Rx for another six days at home. I didn't feel stronger for another month and then it took an additional four months to say I feel back to normal, but at 78, that's like a real setback to muscle tone and I had to do my own PT to catch up with where I am now, 9 months after the sepsis hit me. There's a thing called prolonged sepsis and I may have had it. Your have some advice here in other posts, and I concur with not pushing yourself the first couple months, depending on your age. You are sick and you have permission to act like it, just sleep when you can and watch tv, read, crosswords, fiddle around as you can. If you need to get back to a job, that will be tough. Ask for help. This takes patience, from you and from others. Hope those around you accept this is a slow process for most, and have patience with your changed life for a few months. Blessings and good luck to you, hang tough. Vicki