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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)
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@zenk

Hi bees, I have experienced muscle weakness over the last few months. I have sjogrens . I do not have any Rheum markers. Wonder if anyone here with Sjogrens has experienced muscle fatique or abnormal nerve conductions studies with their Sjogrens. Thanks Zenk

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Replies to "Hi bees, I have experienced muscle weakness over the last few months. I have sjogrens ...."
Langold | @rarelybees2889 | Sep 21, 2019

Hi Zenk. I have more arthritis issues instead, also central nervous system issues. Last visit to Mayo the rhemotologist noted that I may have an inflammatory hand arthritis related with SS. I only had one nerve test. Also probably have some some small fiber nueropathy.
Nice to meet you!

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melperez1223 | @melperez1223 | Sep 21, 2019

I have had tremendous muscle weakness, but my tendons bother me most. I tested positive for severe small fiber neuropathy a few years ago in all 5 biopsy sites. Carbamazepine, Requip and Oxy help. I also developed some sort of clotting disorder and have had 2 PE’s and a form of Pulmonary Fibrosis. Really strange.

What are you taking?

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