← Return to Sjogren’s Syndrome – Introduce yourself and meet others

Discussion

Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Sep 21 9:28am | Replies (630)
Comment receiving replies
@zenk

Hi bees, I have experienced muscle weakness over the last few months. I have sjogrens . I do not have any Rheum markers. Wonder if anyone here with Sjogrens has experienced muscle fatique or abnormal nerve conductions studies with their Sjogrens. Thanks Zenk

Jump to this post

Replies to "Hi bees, I have experienced muscle weakness over the last few months. I have sjogrens ...."
Langold | @rarelybees2889 | Sep 21, 2019

Hi Zenk. I have more arthritis issues instead, also central nervous system issues. Last visit to Mayo the rhemotologist noted that I may have an inflammatory hand arthritis related with SS. I only had one nerve test. Also probably have some some small fiber nueropathy.
Nice to meet you!

VIEW AND REPLY
melperez1223 | @melperez1223 | Sep 21, 2019

I have had tremendous muscle weakness, but my tendons bother me most. I tested positive for severe small fiber neuropathy a few years ago in all 5 biopsy sites. Carbamazepine, Requip and Oxy help. I also developed some sort of clotting disorder and have had 2 PE’s and a form of Pulmonary Fibrosis. Really strange.

What are you taking?

VIEW AND REPLY