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Diagnosed: MGUS

Blood Cancers & Disorders | Last Active: Aug 10 10:24am | Replies (136)

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Hello, I was diagnosed one year ago. I recently had my blood draw, it is only drawn once a year. My numbers had went up a little, but the doctor did not think it was cause for concern. I’m concerned. I have hip pain that has lasted for over a year. My doctor says I need a new hip. My kidney function is down to 33, and according to my lab work I have anemia. I have type 2 diabetes, and high blood pressure. I have not had an issue with either in over two years or longer. I just don’t think yearly testing is enough. I now have a nephrologist, I can’t wait to see what he thinks about all of this. Is my numbers up because of my low kidney function, or is my kidney function low because of my numbers? I can’t shake this feeling, that I have a reason for concern.

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Replies to "Hello, I was diagnosed one year ago. I recently had my blood draw, it is only..."

I agree with you. I have to fight to get my blood work done every six months. I was diagnosed after a fractured hip and replacement. But the M spike doesn't show up in every blood test. Oncologist told me it does not go away, it just "hides out" for a while but once the M spike is there, it should be monitored & is always there even if "hiding". Drives me crazy because my primary does not get concerned with it. I guess there are many people walking around for a long time with MGUS. IT is unfortunate that there is not more research available. MY blood work did correct itself but there is still slight abnormalities that I suspect will be there "hiding" until they decide to show again in results.