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Mucinous adenocarcinoma: Anyone treated with Tabrecta (capmatinib)?

Lung Cancer | Last Active: Jul 30 8:21pm | Replies (14)
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@joycegray1940

I saw in my paper work that I had a stage 3, but the Dr. said it was mucinous adenocarcinoma & had it about 2 to 6 years without symptoms. He said it looked like pneumonia on x-ray & I have been treated for bronchitis several times & once for pneumonia. I have asthma too for about 40 years. The Dr. said it was rare & he has put me on Tabrecta a type of chemo pills, which has a lot of side effects. He also said this type has much less risk of distant spread but much higher risk of field cancerization with new area's of lung showing up not by metastasis but by a new strikes of lightening due to the underlying mechanism that started the first issue. This is all so confusing to me. I don't think I am a candidate for a lobectomy because I am 80 yrs. old & I think the Drs have given up on me. Are you doing well after your surgery? Are you on any type of medication? I wish you well & God bless. Thanks for responding to me.

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Replies to "I saw in my paper work that I had a stage 3, but the Dr. said..."
yellowstonelady | @yellowstonelady | Jul 29 4:52pm

Stage 3 lung cancer can be mean many different things, like a very large tumor or a smaller tumor that has invaded the rib cage.... or?

Just for some perspective, I was diagnosed with a 10 cm (4 inches across) mucinous adenocarcinoma in 2000 when I was 46. I had that removed with surgery which was very hard even though I was young and strong. Then I had a new tumor about 2cm (about 1 inch) develop in 2021. Again it was the mucinous adenocarcinoma. At age 67, I was not up for surgery again. I was sent to a radiation oncologist who used SBRT (highly focused radiation beam) to zap it. It took three treatments, an hour each treatment. Easy compared to surgery. That tumor is completely gone.

Then in 2024 I had yet another small tumor pop up. Again I had it zapped with SBRT (3 days, 3 one hour treatments). And now we wait to see if it goes away too.

I am 70 years old. My heart is not so good so I could never survive lung surgery now. So if mine comes back again, I will ask for more SBRT because it is easy as going to the dentist.
If I can't do SBRT because the radiation oncologist says the tumor is in a tricky spot, then I would have to opt for chemo or no treatment. But my mucinous adenocarcinoma has shown itself to be sluggish and slow growing so then it might be that I could peacefully co-exist with it until my heart fails or a pass from another co-morbidity.

So I guess I am wondering why the SBRT radiation isn't a treatment option for you. Have you spoken with a radiation oncologist?

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