← Return to Alzheimers: Anyone else out there living with dementia?

Discussion
Comment receiving replies
@misspatty

Dear peggyrk, I have been diagnosed with Mild Cognitive Impairment and a blood test and PET Scan have indicated protein that is associated with Alzheimers. I have had 2 infusions of Leqembi and experienced bad headache, nausea, body aches, fatigue, and low grade fever. As you say, it is not pleasant! My primary suggested I take Tylenol and an allergy pill before the infusion and continue the Tylenol as directed. The second infusion was not fun, but the side effects were less severe. Normally, I would not want to continue with a treatment that makes me sick for 2 days, but I feel a bit desperate since this is the only treatment to slow down the Alzheimer's progression. I've been told that I am fortunate that my Alzheimer's was caught early enough to be eligible for the Leqembi. I pray you have less side effects as your infusions continue and that it is an effective treatment for you. God bless you. It's not easy to deal with such a sad diagnosis, is it?
Miss Patty

Jump to this post


Replies to "Dear peggyrk, I have been diagnosed with Mild Cognitive Impairment and a blood test and PET..."

Thanks for sharing your experiences with me. No one prepared me for these fairly awful chills, aches, and pains. After my first infusion, the side effects were so severe, I ended up going to the local ER the next day for some relief. Eventually, a high dose of Tylenol eased me enough so I could return home and get some good quality rest. By the third day, I was very tired, but felt better.

The second times were far better, albeit still with aches, pains, and very severe chills. Each of these experiences my recovery time has been about a day. So, improving!

For now, I will continue to stick with getting Lequembi infusions. But, we’ll have to wait and see how it goes!