Thank you for your kind and supportive words! I doubt my daughter could do the TMS, first as her epileptologist wouldn't order and secondly, she pulls off leads just for EEG!
We might have turned corner with Lamictal, as she reached 250 mg she has seemed calmer, no seizures and now titrating to 300 with biweekly additional 25 mg, then the lab to see level.. as with Dilantin she needs to be on high end of " normal" range to prevent seizures..
Her g . i. system is still out of whack from the colonic interposition and have to be careful with drugs that cause constipation..
So her comorbid of autism/ epilepsy remain a huge challenge. she needs 24/7 supervision, care and i trust her team if 2:1 caregivers in licensed carehome.. they are very familiar with seizures as 3 of the 6 residents gave epilepsy
I just try to stay very involved but as a 76 year old mom with my issues its getting harder!
Such a great support group here, with my daughter being nonverbal it lets me get answers from " typical" users of drugs for epilepsy!. Thank you to all!!!