Sjogren’s Syndrome – Introduce yourself and meet others

@414144 Good morning That is a
problem .Do you have a PCP that's your overall Dr With anything that deals with bones and muscles just stick with your rheumatologist Talk with your Dr on the other problem about your vascular Dr I think this is what I would do. Good luck I hope you solve your problem.

Dear Lioness, Peach here. I went to a vascular doctor and she starts to treat me with medicine for the two arthritis problems I have-(Rheumatoid and Psoriatic) Two medications were prescribed that were dangerous to my life. She will not address the vascular problems. How to handle this? I have asked to see a different vascular doctor. (This doctor also yells at me and I do not have a hearing problem.) I brought medical reports, etc which i was told to bring with me and she did not want to see any of them. All this in just the one office visit I had with her.

Can anyone tell me where I can find medical research documents or medical text that connects autoimmune condition(s) to tooth loss and/or cracking? I understand there is a connection to dry mouth / Sjogrens and perhaps others.

Yes, currently. First, my ear wax disappears for 8 yrs. From the interferon, it returns with a terrible earache I've had for a month now.

@peach414144 I have was just thinking of you and wondering how you are glad your still here good to hear from you It's to bad this is how we do. I have sjorans also but am thankful I just have dry eyes and mouth .I use Biotene it helps me .I do have M.D. and glucoma my eyes water for no reason.I put drops in 4-5 times a day After reading how bad it can get I feel blessed its just my eyes and mouth Bless us all.

@ Yes, I have psjogrems and other autoimmune diseases. No teeth, dry eyes, gloucoma, etc., etc., etc. It gets very bad. Somehow I am still here but it gets harder but so far I am still here.

So far not yet. I have just recently found out about it. My case is being reviewed by a Harvard Dr. That specializes in SS. Just to confirm my Diagnosis. It showed up in my bloodwork. I thought it was more Lupus. But my SS is primary. I had to be off work for a few months. The fatigue severly deteriorated my quality of look life. I have really severe brain fog to the point i can hardly create sentences, talk or comprhend anything. Which i do technical support over the phone for a living. Which ive been at my job 6 years. It has me questioning if i can even continue work with the amount of mistakes ive been making. Its been devestating. I am on Plaquenil now and prednisone. Which really helped the first fee months. Im ferling the effects of brain fog really bad again along with severe aches and pains. After having a non stop flare up for 6 months i thought i was starting to make progress but now i feel like one step forward, 2 steps back. The medication they gave me for the prolactinoma was toxic to my body. So my options are now limited there. I do see a rheumatologist, which i am not sure what he specializes in. This will be my 3rd visiit coming up. My eyes were swelling shut everyday for months and i couldnt get any Drs to listen. Its been a frustrating experience

I have had temporary plugs put in and they really helped. My Dr. didn't want to put the permanent ones in as he was concerned about having to take them out. He has replaced them a few times but they are wonderful. I was using drops every 15 minutes and now I can go for hours without using drops!

I have Sjogrens too and I was getting a chest scan frequently from m.y Cardiologist.  He kept spotting something in my right lung and we thought it was the Sjogrens but this time I got a shock.  It was lung cancer so I had a lobe removed in May.  Add to that I had a stroke in January and I now have an infection on my liver!  I am only saying this is possible, but rare.  I also have itchy ankles.  Primary problem is Psoriatic Arthritis.  Have you tried an OTC cortisone ointment on your itch?  @marylou705