Hi Patty, thank you so much for sharing your detailed experience. I don't take it lightly. I had to start avoiding google too, and it was just too much information to sift through.

Like everyone else, they found out I had MGUS because of something unrelated; in my case it was just my annual check up. Since I'm at the beginning of this my next appointment is in 3 months. After that I suppose my doctor will have me come every 3-6 months. I don't have a hematologist/oncologist at this point. But I'm trying to get all the information I can so that I can go into this prepared.

Ironically, my longest illness has been migraines, for over 40 years. We *just* got my migraines under control about 2 years ago. I went from having 3-5 migraines a week to 1-2 a month. This is a *huge improvement* because I work full time and I'm always running around with my kids.

Now that MGUS has been diagnosed I'm really hoping that it doesn't become multiply myeloma, because I'm tired of being in pain and tired. I can't imagine my spine and skull having pains. It's scary to me.

Thanks for writing!