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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 28 11:57am | Replies (877)
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@karukgirl

Hi there @katiekins,
I am not sure why sometimes I have to sign back in either, but at times I do.
I am on Connect every day and it comes to my email inbox as the Daily Digest...is this how you get yours too?
With the Daily Digest I simply click on it and away it goes.
I'm happy that you find this site supportive and informative. It has been for myself too.
I know you did not ask me, you asked @kelliw about her gradient, but mine was high like yours. I think at one time it was 76 or 77. It's down to 70 now after my septal myectomy.
The afternoon before my open heart surgery the team discussed my mitral valve and the possibility of replacement vs repair. Turns out it was just fine, but because of the anterior motion from the high gradient it looked like it needed help before they got in there.
I only mention this because you mention you need mitral valve repair shortly and this is food for thought. I understand valve surgeries can be done transcatheter now...is this the plan for yours?

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Replies to "Hi there @katiekins, I am not sure why sometimes I have to sign back in either,..."
katiekins | @katiekins | Aug 1 6:40pm

Hello Debra, the e.mail comes from Mayo clinic but don’t know how to get to settings on my Mac computer! Silly me. It didn’t happen before so will just have to sign in each time. I don’t believe I am having transcatheter repair. I am supposedly having a minimally invasive repair/replacement but am looking for a robotic repair but believe only one surgeon does robotic in the U K. I have to sign a form that incase the surgeon has to go in from the front I agree. I was shocked when he said that it’s my mitral valve in May so have to accept what he says. It was so quick I felt I didn’t ask what I wanted to ask. He also said Camyos wasn’t for me as thickening is only 1.5 mms but gradient can go up to 111. On valsalva. I wonder why yours is still high though. This is a wonderful site to get information from so thank you all for your input, Do you feel better after your myectomy? Good wishes to you. 🙏🏼

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