1. < Blood Cancers & Disorders

Type 1 diabetes and essential thrombocythemia: Anyone have both?

Posted by platlite7 @platlite7, Jun 28 8:06pm

Hi, I am newly dx with ET on HU. I also have type one diabetes and on an insulin pump. To manage type one I use a cgm unfortunately HU interferes with it functions. Anyone in this group share these concerns? Looking for support. Docs are unhelpful.
Thanks

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Mentor
Lori, Volunteer Mentor | @loribmt | Jun 29 10:21am

Welcome to Connect, @platlite7. This is a bit of a conundrum for you with the conflict in meds. From my understanding HU can falsely elevate sensor glucose (SG) readings which would interfere with your successful treatment for diabetes.

From the American Diabetes Association talks about the effect of hydroxyurea with a continuous glucose monitor.
https://diabetesjournals.org/care/article/44/5/e89/138743/Interferent-Effect-of-Hydroxyurea-on-Continuous
There are other drugs available besides HU for the treatment of essential thrombocythemia. Have you discussed the possibility of changing from Hydroxy to another type?

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 25 12:01pm

@platlite7, I hope you saw the helpful post from @loribmt with info from the American Diabetes Association. I'm also tagging fellow members like @huronshores @bosmac and @richie123 who manage essential thrombocythemia and diabetes (although I'm not sure whether type 1 or type 2).

I'm also bringing @2011panc and @windeyshores who have experience with type 1 diabetes and managing other health conditions and medications that can affect blood sugar levels. They may have some insights even if not hydroxyurea (HU) specific.

@platlite7, does your hematologist work together with your endocrinologist to help devise a treatment plan that works for you?

REPLY
2 replies
huronshores | @huronshores | Jul 25 1:35pm

Hello - I have Essential Thrombocythemia but not diabetic. Have been treated with Hydroxyurea for sometime. There are a couple of options but Hematologist said HU is best (in my case).
I would guess Hematologist and Dr treating Diabetes would confer to see how you are doing. I know people that also have Diabetic Educators that they see and they confer with Doctor. Sounds like you need to voice your concerns to Hematologist, your Doctor etc regarding any problems, so they can work with you on your treatment. Don’t be afraid to ask them things. It is your well being that is at stake. Good luck.

REPLY
platlite7 | @platlite7 | Jul 25 1:36pm
In reply to @colleenyoung "@platlite7, I hope you saw the helpful post from @loribmt with info from the American Diabetes..." + (show)
@colleenyoung

@platlite7, I hope you saw the helpful post from @loribmt with info from the American Diabetes Association. I'm also tagging fellow members like @huronshores @bosmac and @richie123 who manage essential thrombocythemia and diabetes (although I'm not sure whether type 1 or type 2).

I'm also bringing @2011panc and @windeyshores who have experience with type 1 diabetes and managing other health conditions and medications that can affect blood sugar levels. They may have some insights even if not hydroxyurea (HU) specific.

@platlite7, does your hematologist work together with your endocrinologist to help devise a treatment plan that works for you?

Jump to this post

They lack a crossover understanding and limit their help to their own specialty

REPLY
bosmac | @bosmac | Jul 29 6:01am
In reply to @colleenyoung "@platlite7, I hope you saw the helpful post from @loribmt with info from the American Diabetes..." + (show)
@colleenyoung

@platlite7, I hope you saw the helpful post from @loribmt with info from the American Diabetes Association. I'm also tagging fellow members like @huronshores @bosmac and @richie123 who manage essential thrombocythemia and diabetes (although I'm not sure whether type 1 or type 2).

I'm also bringing @2011panc and @windeyshores who have experience with type 1 diabetes and managing other health conditions and medications that can affect blood sugar levels. They may have some insights even if not hydroxyurea (HU) specific.

@platlite7, does your hematologist work together with your endocrinologist to help devise a treatment plan that works for you?

Jump to this post

Mine is type diabetes. I manage it with Sitagliptin (Januvia, 25mg)

REPLY
Please sign in or register to post a reply.