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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 4 days ago | Replies (807)Comment receiving replies
i’m curious about why you could not take Metroprol?
I’m on Metoprolol XL 25 mg. twice a day.
The cardiologist wants me to go to once a day for two weeks and then try to discontinue it in a month.
I don’t have shortness of breath, chest pain, etc. but I do have a lot of fatigue.
would appreciate anyone’s feedback that is on this medication.
The Camzyos has brought my numbers down to normal.
Replies to "i’m curious about why you could not take Metroprol? I’m on Metoprolol XL 25 mg. twice..."
Hi,
I started Camzyos program in June at a lower 2.5 dose for first month. I was also on metoprolol 25 mg at the time. Symptoms improved somewhat but not enough.
Second month dr. increased Camzyos dose to 5 and reduced metoprolol to 12.5.
Reason being it was slowing down my heartbeat too much while Camzyos is trying to increase my heart energy overall.
I continued my third month at 5 with reduced metoprolol.
I have just completed my initial phase all with monthly echos.
I am on next phase of Camzyos “maintenance phase” with same doses.
My cardiologist will access any further changes in 10 weeks with a stress echo.
So far feeling better but not where I need to be yet.
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Hi @peggynurse. Some 10'ish years ago, I was put on Metoprolol (no idea what dosage). Suddenly I could not stay awake more than about 6 hours. Did not matter how much I slept at night or what time I went to be or what time I woke up. After about 4 hours I would start to get foggy and sleepy, and by 6 hours I would be dozing off at my desk, or worse - behind the wheel! I ended up on short-work-days for a while until I changed from Metoprolol to Diltiazem (Tiazac). Within a week or so, my sleep situation was back to normal. Still on it today. My OHCM symptoms always included fatigue, but it was an "exhausted from a hard workout but I'm not sleepy" kind of fatigue rather than an "I just can't keep my eyes open" kind of fatigue - if that makes any sense.