← Return to 2 weeks for BMB results now Pathology is adding several weeks more

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@juniperjgin

Thinking of you as you continue waiting.
I hope that the extra testing simply indicates good, attentive, thorough care! That is definitely better than a physician overlooking something that could be monitored and prove to be informative and helpful.
Knowledge is power.
I am sorry that the frustrations are mounting for you as you mark a fourth year dealing with this cancer. It’s true that the sense of medical trauma can increase as time marches on and we continue to battle disease and spend much energy, time, and resources simply managing our care-appointments, scheduling, testing, lab work, prescriptions, insurance, billing, et cetera.
The illness may be exhausting, medication side effects can be debilitating, and the general fatigue can wear a person down.
The weight of all of it can be heavy.
So, something like an extra long wait for results feels like one more thing that is simply “too much.”
It’s not an easy place to be.
I hope you were able to enjoy your vacation and find some refreshment in that change of pace and scenery.
Do you have access to a good therapist? Is it helpful to talk through things?
I hope you have the support you need and feel that you are cared for well.

Blessings to all of you working to maintain the best health possible or trying to regain that which has been taken by disease.
Take good care of yourselves!

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Replies to "Thinking of you as you continue waiting. I hope that the extra testing simply indicates good,..."

@juniperjgin Thank you so much! Yes it's true that the extra long wait time is simply too much. I have a few worrying signs, including level 2 Myelofibrosis and very high LDH all of a sudden. My white blood cells are now going straight up (they were always normal - my only normal blood count). I took Hydroxyurea for a year due to sky high platelets (over 1 million), but had to stop as it was lowering my Hemoglobin. My MDS is at odds with my MPN (ET) so it is tricky to treat. Treating one makes the other worse like a seesaw.

I did have a great time on vacation (Portland and the Oregon coast) and got to see my son and his darling fiancé. That and getting together with friends makes the time go by.

I've tried many therapists and have never found the right fit. I rely on my dear friend Jane, who I've known since Junior High as my therapist. She knows me so well - and actually has a degree in Psychology - that I can talk to her about anything.

Thanks so much for your kindness. I'll report back in when I know something!