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@ocogram

I am 78 and was diagnosed with orthostatic tremor 8 years ago by a Movement Disorder Neurologist. It is a rare neurological disorder ( in 8 years I have never met anyone else with OT!), characterized by high frequency tremors in the legs. Standing in one spot is so difficult and feels like I will lose my balance. Walking is better, although that has become more difficult over the years. Many doctors have never heard of it, and I had to "educate" my primary MD, my headache specialist, and my endocrinologist about OT after I was diagnosed. A good source of information is http://www.orthostatictremor.org. It is truly a difficult disorder to live with and misunderstood by many. I tried meds for 3 years, but they did not help and had too many side effects.

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Replies to "I am 78 and was diagnosed with orthostatic tremor 8 years ago by a Movement Disorder..."

Thanks for your reply. I so understand about drs. knowing nothing about this. I think because it happens to older women! I going to be advising my first three doctors as to what this is so the next time a woman needs help, they’ll know where to start.

I don’t feel I’m getting any worse, but I guess I’ll know it when that happens. Good luck to you and keep walking!

I so understand everything you have stated. As long as I am very mindful of each step I take, I’m okay, haven’t fallen lately.

I also have what is supposedly unrelated vibrations in my core only when I am lying down. Either before I fall asleep or when I wake up. Once I’m up, they go away. No pain, just inside vibes.