← Return to 2 weeks for BMB results now Pathology is adding several weeks more

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@bonnieshaffer

Yes I had a Bone Marrow Biopsy (my third) on July 10th, just as I was heading out of town for vacation. I have MDS/MPN overlap with Ringed Sideroblasts and ET. I was diagnosed at the end of 2020.

My Doctor was concerned about my Hemoglobin dropping to 8.5 from its normal 10 so insisted I get the Biopsy ASAP.

So more than two weeks later I've heard nothing. I made some calls and got someone to call Pathology at the hospital to find out when the tests would be ready. He said it would be several more weeks.

I just wonder why no one let me know the waiting period would be much longer. Usually I get blood tests every 2 to 3 weeks as my cancer seems to be progressing.

Since the rushed BMB it has been radio silence from my Dr. who I really really like.

I just wonder if Dr.s have any idea how hard waiting is. I'm getting past it and am not going to worry about it anymore. It's just frustrating.

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Replies to "Yes I had a Bone Marrow Biopsy (my third) on July 10th, just as I was..."

Thinking of you as you continue waiting.
I hope that the extra testing simply indicates good, attentive, thorough care! That is definitely better than a physician overlooking something that could be monitored and prove to be informative and helpful.
Knowledge is power.
I am sorry that the frustrations are mounting for you as you mark a fourth year dealing with this cancer. It’s true that the sense of medical trauma can increase as time marches on and we continue to battle disease and spend much energy, time, and resources simply managing our care-appointments, scheduling, testing, lab work, prescriptions, insurance, billing, et cetera.
The illness may be exhausting, medication side effects can be debilitating, and the general fatigue can wear a person down.
The weight of all of it can be heavy.
So, something like an extra long wait for results feels like one more thing that is simply “too much.”
It’s not an easy place to be.
I hope you were able to enjoy your vacation and find some refreshment in that change of pace and scenery.
Do you have access to a good therapist? Is it helpful to talk through things?
I hope you have the support you need and feel that you are cared for well.

Blessings to all of you working to maintain the best health possible or trying to regain that which has been taken by disease.
Take good care of yourselves!