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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Replies to "It sounds like it looks like this drug doesn't really do anything for the people that..."
Hello again @don69. The drug has actually gone through very rigorous testing and approvals the same as every other new medication. The FDA will have evaluated Camzyos and decided that, based on scientific evidence, it is worth approving. As to your other comments about false hope and the drug not doing anything for people with HCM, I would have to differ. Certainly there will be some people who don't respond well to it, but that is the same with every medication. Personally, I could not tolerate metoprolol, but it work tremendously well for many (most?) people. Using myself as the example again, Camzyos took me from being unable to climb stairs or even bend down to tie my shoes, and completely cleared up all of my obstructive HCM symptoms. As I said, the way I have read the hundreds of posts in this thread, Camzyos seems to be very beneficial for most of the folks here. Of course if you meant that it doesn't do anything for people with non-obstructive HCM, then you are correct. Unless something has changed recently, it is ONLY prescribed for obstructive HCM (oHCM or HOCM), and even just for a specific sub-set of those folks, and not for non-obstructive HCM.