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Thank you so much for writing I appreciate it. I did have the biopsy but haven’t been checked for bone lesions. I have met with a hematologist oncologist. I felt a little rushed but she did go over my tests. I am so frightened about it turning into myeloma. I need to get my head out of the future and live each day. I already suffered from health anxiety and this is so hard for me. Your response helped.
Replies to "Thank you so much for writing I appreciate it. I did have the biopsy but haven’t..."
@amyboylan1 It's natural to be apprehensive when we get a diagnosis like this. There are a lot of horror stories that are easy to find! Don't listen to them, is my best advice. As @pmm has said, each of us is an individual, and we will respond to this diagnosis in our own unique way.
I am one of the overachievers, morphing from MGUS to SMM [smoldering multiple myeloma] within a year of diagnosis, then advancing to active multiple myeloma within a year from that. But believe me, that is super highly unusual, even according to my seasoned medical team. For the highest percentage of us who start out with MGUS, that is where we remain. As you have read, maintaining a healthy lifestyle, exercising moderately, minimizing stress all will help overall. Advocate for yourself, become educated from reliable sources [International Myeloma Foundation myeloma.org is a wonderful site!] and stay positive.
We are here to support each other, and share our strengths.
Ginger
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@amyboylan1
I think that response is perfectly normal. Keeping active and trying to minimize stress are good as well as healthy diet and exercise… All the things we should be doing anyway.
I’m sure some members have some things that work for them that they will add to that list.
Just make sure that your doctors stay on top of things. A little gentle nagging, asking questions and reminding them of your healthcare needs will go along way. Sometimes it’s the squeaky wheel.
I’m so glad that you found us and I hope that you will let me know how things are going.