I use Restasis twice daily and it does have something in it.  If you need something in between, I use liquid tears with no chemicals in it.  My CPAP seems to make my eyes drier.  We're at 6200 ft and it's very dry in CO.

Welcome to Sjogrens.  I have recently had cataract surgery on both eyes, and have Chronic Sinusitis.  Restasis works quite well for me.  And Biotene Spray and Gel at bedtime.  Theramints also.  Good luck!

there is a different cpap mask that if you have upper and lower teeth you can use it. it is very small and i think it might be better for your eyes. ask your doctor about this. besides the restas[s i also use liquid tears. but each person must listen to their doctor.

I need a full face mask because I will happily breathe through my mouth!  That's why the one I had before didn't work for me.  I'm marylou8 on this group.

My first mask covered my nose and mouth. I could never get comfortable because it was leaking all the time.

Now I use a tiny one which is so small, it only covers my nose. However, the air pressure is such that if I open my mouth I feel like I am choking. So I keep my mouth closed when I am sleeping. Much better.

Hi:
Who was the Doctor that said “don’t worry about Sjögrens?
Was it at the Mayo Clinic? Thanks.
I have Sjögrens too and it affected my ear and now my kidney. I do not take any meds. for Sjögrens only lots of water

Dear

I just spotted your post today. I don't want to scare anyone away but I really need someone who understands... today especially. I have had Sjogren's for as long as I can remember. Have always had trouble with my teeth even though I am scrupulous about taking care of them. Earaches since I was a child. I also lost my hearing totally in the left ear suddenly 3 years ago in August. I am so lucky to have a husband who at least acts like he's listening but I'm sure he doesn't always want to. I belong to a fun group of artists that get together weekly to paint for two years now. Today they had the music so loud it was impossible for me to think let alone paint. Someone would ask me if it is too loud and turn it down the next song someone would turn it up because they liked that song. It seems like she's the one always doing that. 2 years already and I have to always be the bad guy. I'm so down about it today I'm thinking of quitting. The worse part about it is we are new to this area and this is about the only activity I really enjoy. Thanks for listening. We can share more about you and hearing if you reply I can be a good person to talk to on a better day.

I have had temporary plugs put in and they really helped. My Dr. didn't want to put the permanent ones in as he was concerned about having to take them out. He has replaced them a few times but they are wonderful. I was using drops every 15 minutes and now I can go for hours without using drops!

hi, all, I have sjogrens with small fiber neuropathy, no meds helps and I am on I v. I g , no changes yet, and it has been seven months, anyone else