Hi @ashley3764, welcome to Connect. I'm sorry you've been recently diagnosed with CSS . It's a lot to process at first, but can definitely be better managed once understanding the syndrome and learning self-help tools. Sadly, taking more medications is not the quick fix you may hope for.

Have you begun educating yourself about CSS yet? Knowledge is power and so is self advocacy. @dlydailyhope provided a few helpful links in a previous post . Have you had the chance to take a look yet?

You are right, none of my doctors had a clue about CSS either. I understand how frustrating that is. May I ask what type of doctor determined CSS was your diagnosis? Did did they have recommendations for management?