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Papillary thyroid cancer with lymph node involvement

Thyroid Cancer | Last Active: Aug 2 1:04pm | Replies (32)

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@w3bjamn

Hi! So here's my update - I got ahold of my current ENT, who told me that I will have to have 50-60 lymph nodes removed on the right side of my neck. He referred me to a specialist at a top specialist to have a full Thyroidectomy. I reminded him of my enlarged axillary lymph nodes, which he them ordered a mammogram, chest CT and then a referral to a General surgeon for consultation to results of CT. Everything he sent out has been STAT.
So question for everyone is, when you get diagnosed with Papillary thyroid cancer, do they move "fast." It went from hearing crickets, to now we need to move faster.. asap asap.
Also, when someone has had some lymph nodes removed on their neck, I mean 50-60 sounds like a ton!!! Is that, uh more than usual?
Please, be blunt, don't hold back.
I'm having 4 appointments in 6 days, 3 different doctors and one CT. While I know this isn't the Anaplastic cancer, it still feels "rushed"
- Ash

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Replies to "Hi! So here's my update - I got ahold of my current ENT, who told me..."

My guess is that he mentioned the situation to someone and was reminded that cancer in any form needs to be treated by a specialist in that area. Period. Don't let it freak you out that the referrals were stat. That just means you need to be a priority and not someone they wait and put on the schedule when it's convenient. Stat is a priority, but it's not the emergency situation TV shows seem to make it out to be... I'm thrilled he is taking you seriously though!!! 4 different appointments in 6 days is not that uncommon once everyone finally starts to work as a team. You are fortunate they seem to be putting together a good one. Cathy

@w3bjamn, I'm glad things are moving. Having 4 appointments in 6 days is a whirlwind, but you shouldn't feel rushed. Make sure you ask questions. And if the responses raise more questions, keep asking until you have clarity of your options to make the choices that are best for you.

Here's a list of additional discussions about thyroid cancer and neck dissection: https://connect.mayoclinic.org/group/thyroid-cancer/?search=neck#discussion-listview

The appointments I assume are to get clarity of the diagnosis and next steps. Have you considered getting a second opinion?