Neuropathy: What works and what are scams?
I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Hello @winkman1, Welcome to Connect. I also have neuropathy without pain but I do have the numbness. I also wear compression socks (20-20 mmhg) but I wear them for another condition, lymphedema and they do nothing for numbness. They are strictly for controlling the swelling.
I haven't found anything that does much to help neuropathy numbness but I keep searching. Do you have pain with your neuropathy?
Mostly swelling- Lyrica is marginally useful Feet feel like wood and toes are really hard to curl up
Another good source for complementary and alternative treatments for neuropathy is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
I know this is off-topic, but I never understood the phrase "IF IT SOUNDS TOO GOOD TO BE TRUE, IT PROBABLY IS" ..... "probably is what, true? Too good?
Welcome @fatalfflaw, Don't you just love those play on words sayings. To me "If it sounds to good to be true, it probably is..." means it is more than likely a fake advertisement and not worth the money to give it a try. All this coming from someone who has spent a lot of money on bogus health products.
I hear ya brother! I don't want to tally the $ I've spent on podiatrists, orthopods, orthotics, shoes, various gizmos supplements and voodoo. Yet i keep trying.
I have a bottle of Nuphoria coming soon, the ASO Ankle Stabilizers that I recently tried seem to be , in my case, a valid piece of kit. I'm thinking that faulty biomechanics and instability provoke further inflammation that surely doesn't help!
I also ordered a TENS/EMS unit after experiencing a short session with one that I picked up from Walmart on a whim. It felt positive but was unfortunately defective.
Anyway, the phrase in question strikes me as similar to " I could care less" ....which means that the speaker cares at least somewhat!
Good luck to us all.
I have been dealing with non-diabetic neuropathy for 20 years. In the last 4 years or so, I’ve pretty aggressively tried many supplements and prescription drugs.
My results:
Lyrica helps more than anything else. Benfotiamine helps some and Alpha-Lipoic 700 mg from Nuturna (not cheap so I switched to Benfotiamine, one of its main ingredients) has been very helpful.
Lion’s Mane did nothing, acetyl l-carnitine did nothing, NAC did nothing.
The above were all recommended by people, all were mentioned on this forum.
That said, some things work for some people and not for others.
Non-drug therapy:
I have begun spinal decompression therapy with my chiropractor. It is not at all painful and after the first 2 weeks with 5 visits a week, my lower legs have feeling, I can step into a shower and feel the temperature on my feet for the first time in 20 years and I have feeling in the bottom of my feet for the first time in 20 years. Some foot tingling is still there which I hope will go away with continued decompression. I began the decompression not knowing if insurance would pay any of it but it has become clear that it is something that works extremely well for me and may help me stop my drug therapy. This doesn’t mean that it will work for you or work this quickly. My chiropractor tells me that what has changed for me in two weeks usually takes about a year. I’m extremely happy with how things are progressing and will stick with it to try to eliminate all tingling. To be continued.
I always correct my children to say “I could not care less” because I think that’s what they really mean to say. “I could care less” still indicates a modicum of concern, which is usually not in the case. It’s another statement people frequently make without actually analyzing what’s coming out of their mouth.
What dose Benfotiamine do you take
John
300mg twice a day
I started with half of that and worked my dose up consulting with my neurologist.