1. < Neuropathy

Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

bigjohnscho | @bigjohnscho | 3 days ago

I’ve just started R-ALA and Benfotiamine(separately) but I am finding the ALA is upsetting my stomach. Anyone got any ideas.

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1 reply
suzva | @suzva | 2 days ago
In reply to @bigjohnscho "I’ve just started R-ALA and Benfotiamine(separately) but I am finding the ALA is upsetting my stomach...." + (show)
@bigjohnscho

I’ve just started R-ALA and Benfotiamine(separately) but I am finding the ALA is upsetting my stomach. Anyone got any ideas.

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You didn't say what dosage of R-ALA you're taking, but I've read from other commentors that you should start with a low dose and work your way up. I had the same problem, but now take 400mg a day.

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bigjohnscho | @bigjohnscho | 2 days ago

I’ve started on 200mg R-ALA and 300mg Benfotiamine
I don’t know if these are considered low doses.
Did you stop taking yours for a few days to get over the stomach problems

Thanks John

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bb0753 | @bb0753 | 2 days ago
In reply to @solobeee1 "I have had SFN for 15 years and been looking for relief everywhere. The best I’ve..." + (show)
@solobeee1

I have had SFN for 15 years and been looking for relief everywhere. The best I’ve found for pain is LDN ~Low Dose naltrexone but I have found absolutely nothing for numbness & presently I am at the end of my rope.
A friend just suggested looking into Hyperbaric Oxygen Therapy for Chronic Neuropathic Pain.
I just found this ~ Hyperbaric Oxygen Therapy (HBOT) is an effective treatment for neuropathy. By driving oxygen deep into tissues, it reduces cell death and pain symptoms. Hyperbaric oxygen also stimulates the growth of new blood vessels, enabling the body to increase effective oxygen and nutrient delivery.
Has anyone had experience with this? Please let me know.
Thanks.
BTS

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I tried this 2x week for 6 weeks along with red light therapy, TENS ,and ultrasound treatment I saw no change.

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bigjohnscho | @bigjohnscho | 2 days ago

I have been mulling over the various so called treatments for neuropathy.Those that immediately spring to mind are:-
Alpha Lipoic Acid, Vitamin Bcomplex, Bentothiamine,
Acetyl L Carnitine, etc.we are all searching for that magic treatment. Why don’t we start posting our successes and we would all benefit and it would stop people going down blind avenues time and time again

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winkman1 | @winkman1 | 2 days ago
In reply to @whalen1014 "Hi, do you think you could give a brand name on compression socks? There are so..." + (show)
@whalen1014

Hi, do you think you could give a brand name on compression socks? There are so many…
Thank you , Deb M

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I wear the Futuru brabdc 20-30cm -CVS and Amazon -
but I still numbness in both feet.

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1 reply
solobeee1 | @solobeee1 | 2 days ago

LDN Works great for pain.
Low dose naltrexone.
I’ve been on 4.5 mg for a year & a half.

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Mentor
John, Volunteer Mentor | @johnbishop | 2 days ago
In reply to @winkman1 "I wear the Futuru brabdc 20-30cm -CVS and Amazon - but I still numbness in both..." + (show)
@winkman1

I wear the Futuru brabdc 20-30cm -CVS and Amazon -
but I still numbness in both feet.

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Hello @winkman1, Welcome to Connect. I also have neuropathy without pain but I do have the numbness. I also wear compression socks (20-20 mmhg) but I wear them for another condition, lymphedema and they do nothing for numbness. They are strictly for controlling the swelling.

I haven't found anything that does much to help neuropathy numbness but I keep searching. Do you have pain with your neuropathy?

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1 reply
winkman1 | @winkman1 | 2 days ago
In reply to @johnbishop "Hello @winkman1, Welcome to Connect. I also have neuropathy without pain but I do have the..." + (show)
@johnbishop

Hello @winkman1, Welcome to Connect. I also have neuropathy without pain but I do have the numbness. I also wear compression socks (20-20 mmhg) but I wear them for another condition, lymphedema and they do nothing for numbness. They are strictly for controlling the swelling.

I haven't found anything that does much to help neuropathy numbness but I keep searching. Do you have pain with your neuropathy?

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Mostly swelling- Lyrica is marginally useful Feet feel like wood and toes are really hard to curl up

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | 2 days ago
In reply to @winkman1 "Mostly swelling- Lyrica is marginally useful Feet feel like wood and toes are really hard to..." + (show)
@winkman1

Mostly swelling- Lyrica is marginally useful Feet feel like wood and toes are really hard to curl up

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Another good source for complementary and alternative treatments for neuropathy is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

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