Anyone had cancer return while taking hormone therapy meds?

Posted by mchler73 @mchler73, Jul 14 2:02pm

Has anyone had their BC return even though they are taking Tamoxifen or an A1?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@mchler73

@mir123
I think that is what I did, but couldn’t get it to come up. Maybe I’m not putting in the right words?
I will try again.
Thanks!

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Let me see if I can get a bit of help with this.

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@mchler73

@mir123
Hello,
A while back I saw a post/discussion similar to my situation…..a lump that can be felt but can’t be seen on ultrasound. I have been trying to find it to read the comments but am not having any luck. Do you know a way to find past topics?
Thank you!

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@mchler73 @mir123, I see that @mitch3194 posted something similar here https://connect.mayoclinic.org/comment/1081127/

@tonna shared this experience https://connect.mayoclinic.org/comment/888425/
@kayhaun here: https://connect.mayoclinic.org/comment/1005922/

I used the search phrase "lump not detectable". See results here https://connect.mayoclinic.org/group/breast-cancer/?search=lump+not+detectable#discussion-listview

Hope I found the comment you were looking for.

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@mchler73

@mir123
Hello,
I had my ultrasound. The doc could feel the lump but said she did not see anything concerning on the ultrasound. I am getting scheduled for an MRI to double check.

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That sounds like a good news! The worst is something detected very early, the best is nothing. My lump was palpable but the mammo didn’t see it, the ultrasound picked up a small hypoechoic cyst. Mine was DCIS stage 1, no lymph node involved. If the ultrasound doesn’t pick up, then it’s a good thing. I pray that it’s nothing. Hugs

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Unfortunately yes. I had a double mastectomy in 2012 after having chemo. Was put on Tamoxifen 7.5 years. After I reached menopause my Oncologist switched me to Anastrozole and was on it for 6 months. I had back pain, discovered a painful lump in my clavicle shoulder area. PET scan later discovered breast cancer was found in my sternum, liver, bones, spine, abdomen and lymph nodes. A liver biopsy confirmed stage 4 ER+ Her2+ breast cancer had returned and spread in 2022. Did 6 Taxotere, Herceptin & Perjeta chemo infusions in 2022. Had slight progression and was switched to Enhertu Feb 2023. Completed 7 infusions but heart function declined and Enhertu was stopped. Scans showed stable from late 2023 and as recent as Feb 2024. I had a seizure in March 2024 and MRI showed I now have Mets to the brain and will be doing radiation to the brain next week.

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@mssewest

Unfortunately yes. I had a double mastectomy in 2012 after having chemo. Was put on Tamoxifen 7.5 years. After I reached menopause my Oncologist switched me to Anastrozole and was on it for 6 months. I had back pain, discovered a painful lump in my clavicle shoulder area. PET scan later discovered breast cancer was found in my sternum, liver, bones, spine, abdomen and lymph nodes. A liver biopsy confirmed stage 4 ER+ Her2+ breast cancer had returned and spread in 2022. Did 6 Taxotere, Herceptin & Perjeta chemo infusions in 2022. Had slight progression and was switched to Enhertu Feb 2023. Completed 7 infusions but heart function declined and Enhertu was stopped. Scans showed stable from late 2023 and as recent as Feb 2024. I had a seizure in March 2024 and MRI showed I now have Mets to the brain and will be doing radiation to the brain next week.

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@mssewest
I am praying for you! 🩷

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@myoga

That sounds like a good news! The worst is something detected very early, the best is nothing. My lump was palpable but the mammo didn’t see it, the ultrasound picked up a small hypoechoic cyst. Mine was DCIS stage 1, no lymph node involved. If the ultrasound doesn’t pick up, then it’s a good thing. I pray that it’s nothing. Hugs

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Correction My DX was IDC, not DCIS.

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@mchler73

@mir123
Hello,
I had my ultrasound. The doc could feel the lump but said she did not see anything concerning on the ultrasound. I am getting scheduled for an MRI to double check.

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Good news but I agree with MRI decision. Best to you.

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@mssewest

Unfortunately yes. I had a double mastectomy in 2012 after having chemo. Was put on Tamoxifen 7.5 years. After I reached menopause my Oncologist switched me to Anastrozole and was on it for 6 months. I had back pain, discovered a painful lump in my clavicle shoulder area. PET scan later discovered breast cancer was found in my sternum, liver, bones, spine, abdomen and lymph nodes. A liver biopsy confirmed stage 4 ER+ Her2+ breast cancer had returned and spread in 2022. Did 6 Taxotere, Herceptin & Perjeta chemo infusions in 2022. Had slight progression and was switched to Enhertu Feb 2023. Completed 7 infusions but heart function declined and Enhertu was stopped. Scans showed stable from late 2023 and as recent as Feb 2024. I had a seizure in March 2024 and MRI showed I now have Mets to the brain and will be doing radiation to the brain next week.

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I’ll be thinking about you and hopeful that your treatment kills these cells and that you find peace in the process. I know it’s challenging.

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