I have been diagnosed with CTCL about two years ago. I have been keeping it under control with the triamcinolone cream and narrowband UVB treatment. It has done a good job of controlling it. Still have a few rashes and red spots. The disease has focused my life and I don’t procrastinate and do the things I want to do and accomplish. Yes, living with the uncertainty is not fun but we have to make the best out of it and live our lives to the fullest!