← Return to NET on liver: Question about treatments when no symptoms

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@hopeful33250

Hello @beachboyarkansas and welcome to the NETs support group on Mayo Connect. I really appreciate you advocating for your mom in her recent diagnosis of NETs. I'm glad to hear that she feels good and as you said, "has no issues anywhere else or with liver function." It sounds like your mom's NET was an incidental diagnosis, i.e., there were no symptoms, but it was found incidentally. Is my understanding correct?

Many of us in this group, including myself, never had any symptoms, but the NET was found during a diagnostic test for something else. As NETs are a rare form of cancer, you are wise to consider getting a second opinion. I would highly recommend that this second opinion come from a NET specialist. NET specialists have special training in diagnosing and treating this rare cancer.

Having at least one consultation with a NET specialist (either in-person or a virtual consultation) is extremely important. Mayo Clinic has NET specialists at all three of their locations. If you would like to consult with a Mayo doctor here is a link with appointment information, http://mayocl.in/1mtmR63

If for any reason your mom cannot be seen at Mayo, here is a listing of NET specialists throughout the U.S. as well as internationally.
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
As you are looking to connect with others with NETs in the liver, here a link listing posts that mention liver NETs. I would encourage you to read these posts and hit "Reply" if you would like to ask a question of any of the members.
https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=liver#discussion-listview
Besides scans, has your mom had other blood tests and a 24-hour urine test. Here is a listing of the various tests that are used to diagnose as well as follow up on NETS, https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/

I look forward to hearing from you again as you search out the best treatment for your mom. Will you continue to post your questions and concerns as well as updates on your progress in finding a second opinion?

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Replies to "Hello @beachboyarkansas and welcome to the NETs support group on Mayo Connect. I really appreciate you..."

I will. And we are getting a second opinion from a NET specialist. We are wanting the conservative approach as everything i see everywhere suggest that with her circumstances. Will keep updated.