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Pudendal Nerve Entrapment/Neuropathy/Damage
Chronic Pain | Last Active: Oct 29 9:41am | Replies (592)Comment receiving replies
Hi, your not alone out there.
I have been dealing with this since Novemeber 2023. Have been to dozens of doctors... many not having a clue about it or not wanting to bother to help . Believe me, I have had doctors ( neurosurgeons) who have said, "I have no idea what that is". Theses are nerves, that every neurosurgeon should know where they are! I have had nerve blocks internally ( vaginally and extremly painful) and externally that help with the pain for a few weeks.
Found a new MRI machine that does film for the nerves only - MR Neurography- very hard to find other than at the large teaching hospitals- but your doctors don't tell you about this! It would help to know where exactly the nerve is ( there are soo many) so that targeting for a surgery would be easy. I have been doing research on doctors that do "decompression surgery of the nerve" which I hear is very dangerours.- all over the United States. Extremly expensive if they don't take your insurance ( upward of $100,000)
I'm at wits end.... ALSO considering NALU - periperal nerve stimulation -- don't know if I really like this option, but considering it, to just get rid of the pain until I can find a CURE, not a Bandaid. If anyone else has something, somwhere please let me know!! Thanks
Replies to "Hi, your not alone out there. I have been dealing with this since Novemeber 2023. Have..."
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Hello,
I have nerve damage from the shingles and have been living in agony since 2018. As much as it's going to hurt, I am going to see yet another doctor whose speciality is the nerves and pain. I'm in California and the doctor is in Nebraska. I'm only getting blocks to see if I'm a candidate for a neurectomy. I know I read about other surgeries he does and I believe they were writing about what you have. If you can give me a name of what you have I can get some literature while I am there. This is the last thing I can try. I had a spinal chord stimulator, unfortunately it did not work for me. Thank you.