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MGUS associated with Type I Cryoglobulinemia

Blood Cancers & Disorders | Last Active: Jul 28 4:40pm | Replies (7)
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@spmreads1

MGUS related Cryoglobulinemia Treatments
Can someone share their experience with treatments/effectiveness? I have developed terrible neuropathy in my feet and it is moving up my shins. I am also my husband’s primary caregiver. He was diagnosed with primary progressive MS when he was 40 and was non-ambulatory by 42. That was 20 years ago, and obviously his care requires more and more of me. I guess I am looking for some hope that treatments are effective.

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Replies to "MGUS related Cryoglobulinemia Treatments Can someone share their experience with treatments/effectiveness? I have developed terrible neuropathy..."
Colleen Young, Connect Director | @colleenyoung | Jul 28 2:05pm

@spmreads1, I moved your question about treatment for MGUS-related cryoglobulinemia to this existing discussion to connect you with @hi2l and @pepin31219.

- MGUS associated with Type I Cryoglobulinemia https://connect.mayoclinic.org/discussion/mgus-associated-with-type-i-cryoglobulinemia/

Dealing with your own condition and being a long-time caregiver is doubly challenging. @hrhwilliams knows this well too.

@spmreads1, may I ask what treatment have you had thus far? Is the neuropathy treatment-induced?

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