Hi @don69, This group has been invaluable to me, particularly when I was making the decision to start Camzyos and then subsequently when I was frustrated with my Dr.

You have every right to be nervous. It's still a fairly new drug. It was even newer when I started. I have been on it for 14 months.

I would recommend that you do your research and then follow your heart/ have faith. It's important that you be informed so you can be your best advocate. Know your options.

The drug has been highly effective for many in this group, giving them a new lease on life. For me it has not been as life changing as I had hoped. I still have shortness of breath and a high heart rate upon exertion. I am going to Cleveland Climic in 2 weeks for a more through evaluation. Mayo was harder for me to get to. Next week I am having a new MRI that NHI is developing to examine the heart under exertion.

I may end up having open heart surgery. But, I decided to give Camzyos a try as an alternative first.

Only you can make the decision on how to tackle your HCM. But remember, nothing beats a failure but a try. Good luck! We are here for you.